EMA is committed to support patients living with a rare disease.
The orphan medicines programme for #rarediseases has helped to stimulate the development of new treatments. In over 20 years more than 2⃣3⃣0⃣ have been authorised in the 🇪🇺.
Find out more➡️ https://www.ema.europa.eu/en/human-regulatory/overview/orphan-designation-overview#rare-diseases-at-a-glance-section
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630614446690254862
The #COVID19 pandemic turned lives upside down!
Pressure on healthcare affected those vulnerable, such as people suffering from #cancer.
Looking back at the consequences, we can better prepare health services & patients alike.
#JRCanticipate #HealthUnion #EUCancerPlan
🐦🔗: https://n.respublicae.eu/EU_ScienceHub/status/1630522175730876416
RT @HorizonEU: On #RareDiseaseDay, discover the #EUfunded @ODAK_PROJECT which created a 🆕 treatment against a blinding #RareDisease, shown to cure 87% of patients.
The drug will soon be available to patients in Europe through an early-access programme.
Find out more! 👇
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630517959511752705
RT @rarediseaseday: Time for Africa and Europe to mark #RareDiseaseDay 2023!
TV broadcasts, radio podcasts, public transport visuals… Through various means, the community is sharing our call for equity everywhere! Are you also ready to share your colours 💙💚💜?
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630517768742223874
We are strengthening the 24 European Reference Networks, including with:
🔸Targeted support for more ambitious goals for registries, international expert panels & professional training
🔸Supporting national actions with EU Member States
🐦🔗: https://n.respublicae.eu/EU_Health/status/1630499382285029377
RT @eurordis: Today is @rarediseaseday!
Join us and our colleagues at the Plateforme Maladies Rares in Paris in calling for equity for the rare disease community this #RareDiseaseDay!
@AllianceMR @Telethon_France @fdmaladiesrares @maladierareinfo @Orphanet
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630493974241714176
Today is #RareDiseaseDay📅
The EU is tackling rare diseases through the European Reference Networks #ERN and by funding projects in research and innovation.
Find out more on this thread⤵
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487281751539717
Save the date! With the Heads of Medicines Agencies, we are organising a workshop on availability & #shortages of 💊 to address growing #publichealth concerns in EU countries.
🗓️1-2 March 2023
🔴Live streamed
Read more 👇
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630215597534347264
EMA launches a scientific advice pilot for high-risk #MedicalDevices.
Prioritised devices include:
🩹 devices for rare conditions
⚕️ devices to treat life-threatening conditions
🩺 novel devices with a major clinical impact
Are you a manufacturer? Express your interest now!
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630196230985752578
Vaccinations protect individuals against diseases that could have serious consequences for their health.
Here are 3 examples of serious health threats that could be prevented by vaccinations.
#EUVaccinationPortal #EVIP #vaccineswork
🐦🔗: https://n.respublicae.eu/ECDC_EU/status/1630130626790584320
RT @ECDC_Outbreaks: Our weekly bulletin for epidemiologists and health professionals on active public health threats is out!
This issue covers:
- updates on the earthquake in Türkiye and Syria,
- #COVID19,
- #InfluenzaA (H5N1),
- Group A streptococcal infection,
- #cholera
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630173321806446594
RT @GasteinForum: 📢 There are still spaces to participate online in our upcoming event "Revision of the EU general pharmaceutical legislation - addressing challenges, seizing opportunities" organised in cooperation with @bmsgpk & @AustriaatEU
🗓️ 13 March, 18:00 CET
✍️ https://docs.google.com/forms/d/e/1FAIpQLSdnLVS_edHlRsL4mNBzFR5iCnODpdm9cpDtMLs3LRF03fJ9rQ/viewform
🐦🔗: https://n.respublicae.eu/EMA_News/status/1630173198804303878
📢EMA's human medicines committee, the #CHMP, recommended 8⃣ new #medicines for approval in the 🇪🇺 including:
☑️ three medicines for #cancer
☑️ one medicine for #Fabry disease
☑️ one medicine for facial #angiofibroma
#PublicHealth 👇
https://www.ema.europa.eu/en/news/meeting-highlights-committee-medicinal-products-human-use-chmp-20-23-february-2023
🐦🔗: https://n.respublicae.eu/EMA_News/status/1629085367843401732
#VeterinaryDrugs residues in animals & food
Explore the results in our new interactive data visualisation tool 👇
🐦🔗: https://n.respublicae.eu/EFSA_EU/status/1628703376174202882
#VeterinaryDrug residues in food decline again.
📢Just published | 📖Our latest report shows that residues of veterinary medicines & #contaminants in animals & animal-derived food continue to fall and compliance levels are on the rise.
🐦🔗: https://n.respublicae.eu/EFSA_EU/status/1628703373129023488
Upcoming deadlines📢
Finalise your proposals for these #EU4Health calls for tenders:
🟠Guidance on the management of Substances of Human Origin in Hospitals #SoHO: 1 March 2023
🟡Assessment of characterising flavours in #tobacco products: 11 April 2023
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1628699278095921152
Are you working in #CancerResearch?
Check out the 2023 #HorizonEU call under the #EUCancerMission
The 4 topics focus on cancer...
🔸Understanding
🔸Prevention
🔸Diagnostics
🔸Patients' and survivors' quality of life
📌Deadline: 12 April 2023
https://hadea.ec.europa.eu/news/2023-horizon-europe-call-support-eu-cancer-mission-2023-01-20_en
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1628314434136424448
Working on #HealthResearch? The #HorizonEU Health calls are out!
The topics under destination 3 focus on:
🟢Tackling infectious, non-communicable #NCD and rare diseases
🟢Reducing disease burden
🟢Preparing for and responding to pandemics
Apply by 13/04
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1626569272108494850
#AvianInfluenza keeps on causing enormous damage in the agricultural sector.
We have adopted a new regulation to harmonise rules on vaccination against major animal diseases, such as highly pathogenic avian influenza.
🐦🔗: https://n.respublicae.eu/Food_EU/status/1627631816529088512
🗓️ Save the date!
EMA is committed to replace, reduce, refine (#3Rs) #animaltesting in the development of human & veterinary medicines.
Interested in #AnimalWelfare? Join us online on 28 Feb, 9:00 - 9:45, to learn more on the Agency's work in this field & share your views.
🐦🔗: https://n.respublicae.eu/EMA_News/status/1627972847745245186
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