Important meeting with @NPKUA_Info to discuss PKU patient experiences.

➡️95% of rare diseases still have no treatment, and access to orphan medicines differs greatly across 🇪🇺.

Our upcoming reform of 🇪🇺 pharmaceutical rules aims to change this for the benefit of all patients.

🐦🔗: https://nitter.eu/SKyriakidesEU/status/1593227041062916103