RT @RareDiseasesIE: This is a great opportunity for children to get involved in their own healthcare experiences and to try to shape them for future generations. Many #RareDisease children spend considerable https://time.in/ hospital. It's important @CHI_Ireland hear from us.

🐦🔗: https://n.respublicae.eu/ColmBurkeTD/status/1631753774418067479