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Rare diseases, numerous patients.
Up to 36 million people in the EU live with one of the over 6000 distinct #RareDiseases
Our EU action aims to improve the diagnosis, care and treatment of patients through the pooling of resources and cooperation.
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🐦🔗: https://n.respublicae.eu/EU_Health/status/1630498828955598849
Moving towards an even stronger EU approach on #RareDiseases:
🔸Increased #ERN funding: € 77 Million for the next 4 years
🔸Promote the use of big data within #EHDS
🔸European Partnership for research activities in 2024
Our factsheet:
https://europa.eu/!nPVJnR
🐦🔗: https://n.respublicae.eu/EU_Health/status/1630500039624720384
We are strengthening the 24 European Reference Networks, including with:
🔸Targeted support for more ambitious goals for registries, international expert panels & professional training
🔸Supporting national actions with EU Member States
#RareDiseaseDay #ERNs
🐦🔗: https://n.respublicae.eu/EU_Health/status/1630499382285029377