RT by @kympouropoulos: It is essential for 🇪🇺 to work to ensure access to neonatal screening and new treatments for children born and living with rare diseases.
Today I had the opportunity to discuss this with several associations and patient advocates.
🐦🔗: https://nitter.cz/SKyriakidesEU/status/1707345549320483104#m
[2023-09-28 10:44 UTC]