30.000 people in 🇱🇺 suffer from a
https://nitter.cz/search?q=%23RareDisease
, but there is only treatment for 6% of them.
http://ALAN.lu
supports those affected & their families on the hard pathway for diagnosis and beyond. I was honored to celebrate 25 years of their incredible commitment!🥳🎂

🐦🔗: https://nitter.cz/MonicaSemedoLux/status/1704780932983484820#m

[2023-09-21 08:53 UTC]