Today is #RareDiseaseDay📅
The EU is tackling rare diseases through the European Reference Networks #ERN and by funding projects in research and innovation.
Find out more on this thread⤵
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487281751539717
The European Reference Networks #ERNs facilitate the sharing of knowledge on complex and #rarediseases that require specialised treatments and resources.
Find out more ➡ https://hadea.ec.europa.eu/news/tackling-rare-diseases-through-european-reference-networks-erns-2023-02-28_en
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487284972699648
@rareendoern @eurefnetwork @ern_bond @cranio_ern @epicare_ern @ern_euracan
@erneurobloodnet @ern_eurogen @euro_nmd
@erneyeeu @ernguardheart @ernica_ern @ernithaca @ernlung @siopeurope @ern_rare_liver @ern_reconnet @_ernrita @ern_rnd @transplantchild @metab_ern @vascern
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487287636140038
🟠#H2020 project @solve_rd aims to solve the unsolved #rarediseases by delivering new tests to improve the diagnostics of patients.
The project is closely collaborating with #ERNs @ERN_RND @euro_nmd @ERNIthaca #ERNGENTURIS
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487290874064898
🟡#H2020 project @erica_rd_eu is a platform that integrates the research on #rarediseases from all #ERNs. The ultimate aim is to ensure efficient access and safe therapies for the benefit of patients.
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487293050904576
🟣#H2020 @caramba_project is evaluating the safety and efficacy of the revolutionary CAR-T cell technology to tackle #MultipleMyeloma, a rare hematologic disease
🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487295739543553